A Day In the Park Was Not Always A Walk In The Park

colorful playground

Inspiration for my posts often comes from the blogs I follow. A poignant piece will strike an all-too familiar chord in me and as I read I will be saying aloud to writer, as if they are sitting beside me and can hear, “I know this too.”

Earlier this week I read a piece written by Fiona at Wonderfully Wired called, Onwards and Upwards My Friends…  It’s a beautiful piece about how far her family has come in its journey with autism.

Now there’s a subject near and dear to me.

How far we have come. Continue reading

On What My Autistic Brother Has Taught Me

the kdisIf you asked me what’s been going on around our house lately I could answer in three words…

College admissions essays.

My daughter Meg has been writing them and I have been editing. Friday night she sent me the following essay to proof and as I read her words, I was more in love with her, more proud of her than I thought humanly possible and I thought to myself, what if everyone could have the wisdom this 17-year-old young lady has and what if everyone could treat each other with the compassion, respect and kindness she understands. Imagine what a wonderful world this would be. Continue reading

Guest Post On ASD In My World

When I started my blog I was uncomfortable writing about my life.

It felt so revealing.

I felt so out there.

Most of my life I have spent concealed and to myself.

But I knew I wanted to write and fueled by the adage “write what you know” I put aside my fears and starting sharing my experience parenting a child with Aspergers. Then a funny thing happened, fellow bloggers reached out to me and started commenting on my posts. Oh my, I remember that first “like.” It felt so good! And I started following their blogs and commenting on what they wrote and this incredible online community opened up to me.

It’s satisfying to be part of a group of individuals who open up their lives and their hearts, who reach out to others with offers of support and friendship. That’s the kind of community I like to be a part of. And when Felipa from ASD In My World asked me to do a guest post, to write for her a letter to a mother expecting her second child, I felt like yet another writing goal had come true. I like that.

Please check out my first ever guest post here and Felipa’s blog. We met a week before she delivered her second baby. I am so glad she has continued writing and I am in awe that she does… sleep deprived and all. It took until my baby was 16 before I was rested enough to string a sentence together!

Ableism And The Pink Plastic Flamingos

 

While running errands, my daughter Meg asked if we could go to Target. On another recent trip there she had seen some pink plastic flamingos in the dollar aisle and wanted to buy one.

“They are perfect for the backyard,” she said, rather liking the tackiness of them. “Besides,” she added, “they represent what mankind so often does… wipe out a species then make their likeness out of plastic.”

She’s 17 going on 37.

So, off to Target and straight to the dollar aisle we went. She found them immediately and her face, fresh and enthusiastic, lit up.

She picked out one of the flamingos, wrapped, appropriately, in plastic, looked it over and put it back.

“That one only has one eye,” she said.

Then she paused. After a moment, she bent back down and picked up the very same plastic flamingo she had just returned to the shelf.

“No. I want this one. I’m not going to discriminate against him because he has one eye. That’s just how he is and I like him. He is just as good as the others and I want to give him a home. That’s ableism.” She proclaimed.

Then she asked, “Can we get two so he’ll have a friend?”

And I looked at my child, my sensitive, thoughtful, sweet child and said,

“Absolutely my dear.”

It was a “just imagine” moment as I stood there looking at Meg and her pink plastic flamingos in the dollar aisle at Target. She has lived her entire life with a brother with Aspergers… she turned five months old on the day he was diagnosed. I would be lying if I didn’t say she has suffered on occasion. She has. She has been on the receiving end of his rages. She’s has had to compromise. She has had to bend. She has had to leap ahead four years and be the older, wiser sibling. She has gone to counseling to help her deal with the complex emotions and stresses such a position creates. Yet she has empathy. She has compassion towards him and others with special needs.

Just imagine a world were people had a similar understanding of the differences amongst us and this knowledge spread a Meg-style love and tolerance. A world were we naturally, instinctively include and provide support for those with differences, rather than avoiding them and putting them back on the shelf.

Just imagine…

Charlotte

Siblings of Children With Aspergers

4-year-old Teddy holding 45 minute old Meg.

My daughter Meg is a very cool kid.

She has given me a second, very different mothering experience. She has always been independent and self-sufficient and there were just some situations I didn’t have to worry about her like I had to worry about Ted. For example, I deliberately did not meet the principal of her elementary school because – I DIDN’T HAVE TO. It wasn’t that I didn’t care about her education, it was just that I so relished the normalcy of not having to have ALL THOSE MEETINGS with school like we had to have for Teddy. Maybe I went overboard with the whole never meeting the principal thing, but, oh my, it was SO NICE!

And because she was easy, I tried not to take her for granted. Just the opposite happened actually. She became my sanctuary – my port in the storm. I had fun with her. She was a breath of fresh air. I could relax when we were together.

I also had to look out for her. Four years younger, she was an easy target when Teddy got frustrated. It’s hard to admit, but she was hit, bit, and flat-out tormented by her brother pretty much as soon as she was old enough to walk and consequently able to upset his sense of order. Continue reading