Inspiration for my posts often comes from the blogs I follow. A poignant piece will strike an all-too familiar chord in me and as I read I will be saying aloud to writer, as if they are sitting beside me and can hear, “I know this too.”
Earlier this week I read a piece written by Fiona at Wonderfully Wired called, Onwards and Upwards My Friends… It’s a beautiful piece about how far her family has come in its journey with autism.
Now there’s a subject near and dear to me.
How far we have come.
As a veteran mom I can confirm all that Fiona says and as I read, I joined her chorus with an “Amen!”
And an ”Absolutely”!
And a “This does happen!”
And my thoughts took me back to a piece written almost nine years. It’s about a day in the park with my son, and how very, very far we had come.
Flashback to February 2004
I am sitting in the park on a beautiful February afternoon. Meg has been anxious to come for several weeks but the weather hasn’t been nice enough to be out. That is not the case today. I am so glad that it is warm and sunny. The kids are playing, happy to be outside and I am sitting on a bench, soaking in not only the sunshine but what it feels like to actually sit at the park and relax.
Not far from me, a little girl is throwing a tantrum. She is screaming that she doesn’t want to leave. Through her hysterical sobs I can hear her saying ”I want to stay here.” I understand being upset by not feeling in control. I can understand crying and being upset by something ending that I don’t want to end. It must be difficult to be three or four and not feel in control of most things in your life. It looks like the little girl is with her grandmother, who is staying very calm through out this ordeal. She has not engaged in the tantrum, rather she has let her work through it on her own.
The little girl is rubbing her eyes, obviously tired, and her little body just shakes occasionally from her upset. Her cries are losing their enthusiasm. Grandma is packing up and calling for her to come. I think grandma is tired too and ready to go. She isn’t quite so patient anymore. She asks older brother to carry some of her stuff to free up her arms so that she can carry the girl. They walk off. Two dogs, two kids, one whose cries I can still hear, although I can no longer see them, and an armload of picnic paraphernalia. What a good grandmother. Her patience will pay off, as I am sure the little girl, once secured in her car seat, will soon be fast asleep.
I remember those days well. My child was the one screaming at the park. I used to wonder why he was the only one upset when everyone else seemed so happy and content. I felt so loud, so obvious. I have never really felt very comfortable standing out. I can still remember playing softball in high school and being nervous each time it was my turn to bat because I didn’t like thinking everybody was looking at me. I prefer being anonymous. Funny how things are. I have spent most of my life trying to quietly blend in and now I have this child who loudly stands out.
The universe have a sense of humor though and a plan for us and I believe that you are given what you need to grow. Teddy has challenged me and I have grown a tremendous amount due to him. It’s the gritty sand that irritates the oyster that makes the pearl. It is hard for me to think of myself as a pearl, but I do think of Teddy and Meg as pearls.
I just spotted Ted and Meg. They are off in the distance playing. Just as quickly as I spot them they disappear. They are having a good time. At 12, I can let Ted play now without constantly supervising him. There was a day when I couldn’t do that. Of course, no parent can leave a little one unattended at a playground, but I had to be what our pediatrician called a “helicopter parent.” That meant, as the name implies, I had to hover over him constantly. My little stick of dynamite could explode at any minute, and he almost always did when we were out and it was my responsibility to remain by his side to protect him and the other kids.
When Teddy gets mad his instinct is to lash out. He doesn’t naturally have the self-control to properly express his frustration through words. I have always said that I want to install a pause button in him. I think most people come equipped with that feature, he didn’t. He lacks the ability to stop, just for a split second, before he acts. That split second can make a big difference in what happens next. Often it is the difference between doing the right thing and the wrong thing. When Teddy was younger he almost always acted impulsively and did the wrong thing, such as hitting. Now, with age and endless reminders, he can usually pause and do the right thing. Most of the time I think that our after-market pause button may have a good chance of success.
It was tiring being a helicopter parent. It was isolating too. When the other moms stood around and chatted, I was sitting on the rails of the sandbox, right by Ted. And when Teddy did get upset, I had to instantly remove him so his behaviors did not escalate. It was all so very public. We lived in family housing at the university during this time and we played at the community playgrounds. When Teddy had his meltdowns, it was in front of all our neighbors and rather than receiving support from most, we were offered condemnation.
Teddy had quite a reputation those days. By simply showing up, he could clear a playground. Looking back on that, with the distance that only time can provide, it is rather amazing to think a little boy could be that powerful. I couldn’t blame the parents though, they moved to another playground because they had to protect their child. Teddy was unpredictable and would hit when he got upset and just about everything upset him. Parents couldn’t subject their child to even the possibility of that. I knew it, but that doesn’t mean it didn’t hurt. Even all these years later, as I hear a small boy cry, I look up to make sure Teddy is nowhere near. Old habits die hard.
It is so incredible to be sitting here on this bench writing on the laptop. It is this kind of freedom that I have discovered I really cherish. I can be outside enjoying a glorious Sunday, doing something I like to do, while Teddy and Meg are playing so well together. So often in the eight years since Teddy was diagnosed, it seems as if so much of my energy has focused on him. Of course all parents should feel that way about their child. But sometimes I have felt overwhelmed by the sense of responsibility. I so strongly believe that it is absolutely imperative that I am always doing everything in my power to help him achieve the skills to be able to live independently. It is wonderfully encouraging to see the improvement that he has made doing something that most take for granted, playing at the park. Today I am relaxed, free and full of optimism.
Well the kids are ready to leave so I am going to pack up now. It has been a wonderful afternoon. I sat here for over an hour, enjoying the sunshine and writing. Ted and Meg had a terrific time playing. I have more of an appreciation for a peaceful afternoon at the park than I ever could have imagined. Things just seem a little sweeter when you have worked hard for them. I just don’t know how an afternoon could be any better.
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I like how you said that … “you are given what you need to grow”. How true.
Thank you, Paula. And I absolutely still believe it to be true.
what a beautifully honest piece of writing. I could almost feel all that you went through!! I always believe that God gives us the strength whenever and however we need it, even when we doubt ourselves, to do what is best for us and our loved ones!!
Thank you so much for your kind words and I totally agree with you. We are given what we need to grow and accomplish what we need to, that I have no doubt and it is always comforting to be reminded of that!
I really related to the overwhelming sense of responsibility that children give you. My daughter is now 15 and I still have that feeling. I lost her in a supermarket once when she was about six, My mother thought I had her and I thought she did. Although she had watched the Sesame Street – Don’t leave the store, and we had talked about this I was beside myself. I kept thinking of all the things that could have happened. Of course it was alight and she found a shop assistant who called over the intercom. It upset me for weeks afterwards.
It is good that things are becoming easier for you. I didn’t have the addition of a very hyperactive child.
Kerry, thanks so much for stopping by and for your comment and YES! being a parent and being responsible for another life is an awesome responsibility. There really doesn’t seem anyway to truly understand the magnitude until you do it. I can easily imagine the fear that ran through you in those minutes your daughter was missing. The fear fills every nook and cranny of your being and the depth of your love becomes as intense as ever. You want nothing more than protect your child and I think that motivates us to commit to them as we do. There is no such thing as 100% protection, we cannot shelter them forever from the realities of the world, but we can prepare them. Ted has come so very far and it has been the experience of my lifetime to witness his progress as I know it is for most parents. Thanks again for sharing.
You are so right. The biggest pleasure and the most fraught.
And a
back atcha!
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You’re such an easy writer – I mean that it seems the words just flow, and are easy to read. I didn’t have quite this journey, but I did have a son whose behaviors got him into constant trouble – I too, am sensitive to the limelight and hated the feeling that he/we were not making the cut in our tony little village full of well behaved children of lawyers and doctors. Long ago, but I know what you mean about the occasional scream startling you back to those times.
What a kind compliment. Thank you. Your words and the idea that you took the time to express to me that what I wrote connected with you and to an experience you had, well, my goodness, that’s why I am doing this. Reaching out to others and to help someone else feel less alone, less isolated, if only for a moment, is my goal and to think I succeeded is such a tremendous feeling. You made my day and I appreciate that deeply. I hope all is well with both you and your son and that those early struggles are just memories and served as the roots to a strong, firm today.
And now I find my own head nodding in agreement, reading line after line. Your Teddy is much like my Tyoma, a little stick of dynamite!
At playgrounds, a sea a children part around Tyoma. Not so much because he strikes them (he’s a kicker), but because he shouts orders in a loud jarring manner. He stands out enough to seem like a different, and slightly sinister species.
With autism and Tourette’s awareness, I feel compassion from other mothers. I watch their children, however, who narrow their eyes and edge away. I hover.
As T grows older, he blossoms. In quiet classroom environments thrives. My jerky, jumpy, impatient child placidly accomodates a dyslexic girl struggling to fill in the numbers on her 100′s chart. This feels like Nobel Prize material.
Thank you for reminding to revisit moments past. I enjoyed you post very much.
Lori
Oh how I love how you write about T! And oh, the shouting orders, I laughed as only a mother can laugh who knows! And one final oh, the Nobel Prize, oh my, I used to say I had two flash forwards for Teddy when he was a little guy: 1. I was sitting at his arraignment, 2. I was watching him be awarded the Nobel Prize. Obviously I preferred the latter. Our kids display a wonderfulness about them, and I have no doubt our boys might very well make a positive mark in history.
Keep enjoying the moments, both present and past. They are simply delicious!
My biggest laugh all day! Oh Charlotte! I adore your flash forwards! so true! This was much needed!
Thank you Lori. Love laughter and to think I can spread it, well, how wonderful is that!!!
On Sat, Jan 26, 2013 at 5:39 PM, Life&Ink